MND

Rob Burrow and Kevin Sinfield

MND stands for motor neurone disease. It is what killed Professor Stephen Hawking and it is what is killing Rob Burrow who, in spite of his short stature,  was a tigerish rugby league player. 

He played for England and Great Britain but he spent his entire club career with Leeds RLFC. He is only forty years old but his body and indeed his life are ebbing away because of MND. He can't talk without technical assistance and he is wheelchair bound, requiring hoists for bathing and for getting in and out of bed. He remains in his own home with the support of his angelic wife Lindsey and their three children.

One of Rob's teammates at Leeds was the legendary Kevin Sinfield who captained both his club and his country and remains the highest scorer ever in  Superleague history. They were always close friends.

Two years ago, realising Rob's dilemma and better understanding what MND does to its victims, Kevin Sinfield was determined to raise a significant amount of money for Rob and various MND charities. He set out to run seven marathons in seven days, planning to raise £77,777 - seven being Rob Burrow's shirt number.  In the event, Kevin raised over £2 million!

Currently, Kevin Sinfield is in the middle of another physically challenging attempt to raise yet more funds for his old mate and the national battle against MND. This time the target is £777,777 but already he has raised £647,724.30. His aim is to run seven ultra-marathons in a row from Murrayfield Stadium in Edinburgh to The Old Trafford Stadium in Manchester - where the Rugby League World Cup Final between Australia and Samoa will kick off this coming Saturday.

Kevin Sinfield's admirable charity running and its worthy cause have inspired  Shirley and I to donate before and tonight we donated again. It is the least we can do. If you would like to donate too - go here. I am not sure how this might work out with visitors from other lands with different currencies.

"I’m proud to be supporting five charities with this challenge, charities 
which support people affected by MND and invest in research taking 
us closer to effective treatments and a cure for the disease."
- Kevin Sinfield


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To Live ( Spoilers)



 I studied Akira Kurosawa’s film Ikiru at University soI was intrigued to see how the melancholic Katuzo Ishiguro would recreate it in this much lauded remake. Interestingly the film is set in 1950s as Ikiru was, so from the get go, it had turned the tables on the original which had a great deal to say about the modern Japan.

I had been making notes in my head when I was sat with my laptop in the Storyhouse Cafe, sipping a pretentious orange hot chocolate 
There are perhaps eighty people in the public space here. 
A baby and toddler group has just finished a fairly low key and sweet clap a long to You are my sunshine my only Sunshine as the waitresses weave in and out of the tables mostly filled with people studying or working on line. 

Tom Burke 

Living as it turned out, is a beautifully crafted and elegant piece of filmmaking which perfectly captures the stuffiness of post war Britain. It centres upon Mr Williams, a tight, self contained widower who rules his civil servant office with a quiet , almost silent whisper. Nicknamed Mr Zombie by junior clerk Miss Harris ( the doe eyed Aimee Lou Wood) he has no friends of note and returns home each night to a an ungrateful son and his ambitious and money needy wife.
It is an existence, nothing really more, and when Mr Williams finds out he has months to live, he suddenly embarks on a journey towards acceptance by learning to live again.

Aimee Lou Wood

Bill Nighy, breaks your heart in a simple look . 
His lugubrious face perfectly captures the look of a man who hasn’t lived the life he expected and he’s at his most moving when he’s saying very little at all.
You just feel , his pain, 
Plain and simple.
And it is that which is the power of this film as writer Ishiguro and director Oliver Hermanus lead Mr Williams into connections with a whole group of characters who immediately empathise with him and his situation and whose reactions break your heart all over again .

Tom Burke a drunk writer  ,who takes Mr Williams on an impromptu pub crawl is moved to tears when he witnesses the older man singer a Scottish lullaby from his youth and a beat  policeman ( Thomas Coombes) is affected almost in a spiritual way when he finally witnesses Mr Williams enjoying the fruits of his work labours in the construction of a child’s playground in the slum area of London.

It’s a sad, but gently optimistic film which has a great deal to say , not only about living….but about empathy





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Questions

 Tell me something good?

Favorite Thanksgiving side?

Favorite gift to give?

Do you send out Christmas cards?

What do you want for Christmas?



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